I'm sitting here typing and un-typing, wanting to write but unable to write about what I need to process. The whole aspect of confidentiality in foster care is really challenging when you need to toss ideas around until you settle into some kind of understanding.
Maybe I can be vague enough...
We are still waiting to see more specialists to have a solid diagnosis, but basically, it looks like baby has a pretty serious and life-shaping special need.
We didn't see it at first. Now we do. We've been to a lot of appointments. We'll go to lots more.
For the last two months I've hardly told anyone because it wasn't definite...it might be temporary...please let him grow out of it... But the pediatrician has put a cold, hard handle on the condition. Officially diagnosed or not, the problem is there.
I didn't want to speak that limitation over his life. I didn't want to own that negative possibility for him. But like it or not, that is what we're dealing with now. I didn't want to speak it because I didn't want to believe it.
At this point the problem is becoming more and more apparent. Other people still don't really see it unless I say something, and then they see it right away.
And when I've mentioned the possibility of the need to people, their first reaction is often pity. Instant pity. "Oh you poor, poor baby" I heard today.
I'm starting to see why mothers with children that have special needs say "I don't want pity, I just want you to see my child for all that they are, not just their special need."
I mean, foster care + special needs = a pretty crap lot in life, right?
But that is only one way to look at it. Beyond labels and challenges and classification of family status he is just an absolutely amazing, beautiful baby. Any family would be lucky to call him son.
Our whole family just adores him and it is the privilege of a lifetime to care for him.
I don't want his current struggles to be the definitions of his life. I imagine him as a successful and healthy man one day, and these details are mere anecdotes in his life story.
I imagine that for him, and I also cry, choking on the condition he is experiencing.
I need to get online and do some research. I can't approach things with him the same way as I did with my kids. I've just woken up to the fact that me being in denial actually hurts him because I'm not doing what he needs me to do to help him.
I never dreamed when I said "yes" at 2:30 in the afternoon, that I would be where I am now, facing what we are currently facing, but I am so glad that I did.